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題 名 | 父母對兒童癲癇的態度及適應 |
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作 者 | 朱曉慧; | 書刊名 | 中華民國小兒科醫學會雜誌 |
卷 期 | 31:2 民79.03-04 |
頁 次 | 頁103-109 |
分類號 | 417.5845 |
關鍵詞 | 父母; 兒童癲癇; 態度; 適應; |
語 文 | 中文(Chinese) |
中文摘要 | 本研究以成功大學附設醫院小兒科及神經科門診20名智能正常的癲癎兒童(男8位,女12位)為對象,採取半結構性面談方式訪問其父母,以了解他們對子女罹患此症的態度和適應情形。20名病童的平均年齡為11.4歲(6.8~16.6歲),平均病程為4年(0.2~13.3年)。結果發現大部份父母對於病因、治療目標及豫後均缺乏瞭解,其中15例(75%)對病因持有自己的一套看法,19例(95%)極端盼望早日“斷根”“在過去之就醫過程中,更換醫師及求神問卜的現象普遍存在。在本院治療時雖然大都能連守醫囑服藥,但有16例(80%)對藥物副作用非常擔心。對病童的態度方面,父母有明顯的過度保護和限制傾向。而礙於社會偏見,16例(80%)儘量對他人隱瞞病情,家庭的社會支持系統因此非常脆弱;13例(65%)不讓孩子知道真象。和其他慢性疾病一樣,父母表現出否認、焦慮、愧咎、氣憤、無奈和沮喪等複雜情緒。家庭關係方面,並無重大影響,但大部份父母與孩子間在病情上缺乏良好溝通。本研究顯示癲癎兒童的父母普遍對癲癎症缺乏正確瞭解,而且有誤解情形;對待孩子的態度並不十分正確,而且有種種心理和社會適應上的困難,亟需專業人員在藥物治療之外,主動予以關切協助。 |
英文摘要 | Parental attitude and adjustment were examined in 20 epileptic children (ages 6.8-16.6 yrs), using semi-structured interview. The results indicated that parental understandings of epilepsy were generally poor and incorrect. Fifteen (75%) of 20 parents had their own interpretations of causality and 19 (95%) had unrealistic hope for early and complete cure. Parents tended to overprotect and overrestrict their children. Sixteen (80%) concealed the illness for fear of social prejudice, therefore the social support systems were generally poorly utilized. As in other chronic diseases, all parents went through feelings of shock, denial, anger, guilt, fear, anxiety and depression. Family relationships were not affected much, however, poor communications were commonly found between parents and children. Thirteen (65%) parents never talked to their children about epilepsy. We concluded that parents of epileptic children showed negative attitudes toward their children and had difficulties in their psychosocial adjustment probably related to social stigmata and misunderstanding of the illness. Therefore, communication between physician and parents in both medical and psychosocial aspects should be encouraged. |
本系統中英文摘要資訊取自各篇刊載內容。