頁籤選單縮合
| 題 名 | 裘馨兒母親的轉渡經驗=Transitional Experiences among Mothers Becoming the Caregivers of Children with Duchenne Muscular Dystrophy |
|---|---|
| 作 者 | 李淑莉; 高寶蓮; 田月玄; 許敏桃; | 書刊名 | 中華心理衛生學刊 |
| 卷 期 | 23:3 2010.09[民99.09] |
| 頁 次 | 頁377-399 |
| 分類號 | 419.73 |
| 關鍵詞 | 裘馨氏肌肉萎縮症; 母親; 轉渡經驗; Muscular dystrophy; Mother; Transitional experiences; |
| 語 文 | 中文(Chinese) |
| 中文摘要 | 研究目的:藉由裘馨氏肌肉萎縮症兒童 (裘馨兒) 母親的自身敘說來深入了解其成為照顧者的轉渡經驗。研究方法:研究設計採現象學研究法,以立意取樣選取11位「社團法人中華民國肌萎縮症病友協會」之裘馨兒母親。經由一對一的深度訪談以獲取她們的主觀經驗,訪談資料運用Colaizzi (1978)分析法進行訪談資料分析。研究結果:結果呈現出裘馨兒母親的轉渡經驗包含「汩汩苦流中,給自己力量前行」及「滿滿母愛下,竭盡所能給予」。研究結論:本篇研究結果有助於對裘馨兒母親轉渡經驗的初步認識,並能提供政府機關、健康專業機構、教育單位及支持團體聯合照護的參考,讓裘馨兒母親的轉渡經驗能從擺盪中更趨向穩定。 |
| 英文摘要 | PURPOSE: This study explored the transitional experiences of mothers as they became caregivers of children with Duchenne Muscular Dystrophy (DMD). The focus of the study was to understand their perspectives. METHODS: One-on-one interviews were conducted with 11 mothers of DMD children identified through the Taiwan Muscular Dystrophy Association. Data were analyzed using the Colaizzi phenomenological method. RESULTS: The analysis revealed 2 main themes: “in a stream of bitterness, finding the strength to move forward”, and “being in touch with a mother's abundant love to provide the best for a DMD child”. CONCLUSIONS: The findings shed light on the transitional experiences of mothers of DMD kids and may serve as an important reference for government, healthcare professionals, educational organizations, and other non-governmental organization support teams to improve their services to this group. |
本系統中英文摘要資訊取自各篇刊載內容。