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題名 | 父母或主要照顧者參與智能障礙子女未來照護規劃之調查研究=Parents or Primary Caregivers' Future Planning for Their Children with Mental Retardation |
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作者 | 陳淑瑜; | 書刊名 | 特殊教育研究學刊 |
卷期 | 25 2003.09[民92.09] |
頁次 | 頁85-106 |
分類號 | 547.51 |
關鍵詞 | 智能障礙; 未來照護規劃; 家庭; 父母; 非障礙手足; 轉銜; Mental retardation; Future planning; Family; Parents; Siblings; Transition; |
語文 | 中文(Chinese) |
中文摘要 | 本研究旨在調查父母或主要照顧者對智能障礙子女目前及未來之居所、經濟和監護權的安排,以及社會支持的期望。研究資料的蒐集採用研究者自編設計之「長程規劃問卷調查表」。參與本研究的主要照顧者共計207位,其中包括父母、非障礙手足或祖父母、親戚等延伸家庭成員。參與者之智能障礙子女年齡介與12至29歲之間,而且研究調查期間與參與者同住。 本研究結果顯示,已為智障子女做好未來照顧規劃的父母或主要照顧者不及參與者的二分之一。大部份的照顧者對目前的居所安置感到滿意,並傾向於未來讓子女維持現有的安置方式。但多數的照顧者也表示憂慮目前的經濟匱乏狀況,但卻只有不及三分之一的家庭曾獲得經濟援助。超過三分之一的家庭沒有獲得社會性支持,而且家庭獲得社會性支持與否與規劃未來的照顧安排並沒有顯著關係。 多數的父母或主要照顧者偏好由非障礙手足擔負智障子女未來照顧的責任,但這有約一半的父母或主要照顧者曾和家庭成員討論過未來照護的安排。非障礙手足的需求需要專業人員的重視並提供相關的資訊。此外,研究也發現,背景因素與未來的安置計畫有所關聯。研究結果也強調提早進行轉銜計畫、促進有效的家庭溝通、以及加強障礙與非障礙手足之間的關係之重要性。 |
英文摘要 | The purpose of current study was to investigate the primary caregivers expectations of current and future residential, financial, and legal arrangements as sell as social support for their children with mental retardation. The Long-Term Planning Questionnaire (LTPQ), was used to collect data in Kaohsing City, Taiwan. Participants (N=207) were primary caregivers including parents, siblings, or other extended family members. Their children with mental retardation were between the ages of 12 and 29 years old and living at home at the time of investigation. The findings indicated that less than half of the primary caregivers had made future plans for their children with mental retardation. The majority of caregivers were satisfied with their current living arrangements and intended to maintain their children in their current placement in future. Most caregivers reported concern about their financial insufficiency; but less than one-third of respondents actually received outside financial aid. There are more than one-third of families received no social support nor was there a significant relationship between social support and any future arrangements. Most primary caregivers preferred a sibling to be the future caregiver for their children with mental retardation. However, only approximately half of the primary caregivers had discussed with their family about future arrangements. Professionals must provide resources available to prepare siblings for their roles. In addition, demographic characteristics were found to be associated with future arrangements. The results also highlighted the importance of early transition planning, family communication, and sibling relationships. |
本系統之摘要資訊系依該期刊論文摘要之資訊為主。